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National Fragile X Awareness Day

Floor Speech

Date: July 22, 2020
Location: Washington, DC
Issues: Civil Liberties and Civil Rights

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Mr. THOMPSON of Pennsylvania. Madam Speaker, I rise today on National Fragile X Awareness Day to raise awareness of this genetic disorder.

Fragile X is caused by mutations in the gene known as FMR1. These mutations can result in behavioral, developmental, cognitive, and reproductive conditions, often leading to delayed development of speech and language. In the most severe cases, fragile X can cause potentially fatal neurodegenerative conditions.

Fragile X syndrome affects an estimated 100,000 Americans. But more than 1 million Americans have a variation of the fragile X mutation, meaning they either have or are at risk of developing one of the associated conditions.

This means each Member of this House, on average, represents 230 constituents living with fragile X syndrome, and countless more parents, grandparents, siblings, and caregivers love someone with fragile X.

Each person living with fragile X syndrome, and any other intellectual and developmental disability, makes our world a better place.

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